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Tricia Thompson, MS, RD is a nutrition consultant, author and speaker specializing in celiac disease and the gluten-free diet. She is the author of The Gluten-Free Nutrition Guide and has a MS degree in nutrition from Tufts University in Boston, Massachusetts and a BA degree in English Literature from Middlebury College in Vermont.

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Living Gluten-Free
by Tricia Thompson, MS, RD, The Gluten-Free Dietitian

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When I first started working in this field, the term gluten sensitivity was used interchangeably with the term celiac disease — they basically meant the same thing.

Times have changed. We are now learning that there is a group of people who do not have celiac disease and do not have an allergy to wheat but nonetheless can not tolerate gluten. This condition is being called “gluten sensitivity.”

Very little research has been conducted on gluten sensitivity. However, a study abstract on this condition was recently presented at a medical conference known as Digestive Disease Week. One of the study authors was Alessio Fasano, M.D., Medical Director of The University of Maryland Center for Celiac Research.

Dr. Fasano was gracious enough to answer some questions about gluten sensitivity.

The term non-celiac gluten sensitivity is being used with more frequency. Can you please define what it is and how it differs from celiac disease?

Gluten sensitivity is a non-allergic, non-autoimmune ...    Continue

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@ 2:38pm ET on October 19, 2008 hi everyone!

our next newsletter is going to be on Gluten sensitivity - an emerging epidemic - how to test for it and why it's important to know if your symptoms are caused by gluten. With Integrative Manual Therapy we are using myofascial mapping to test whether or not the cecum is showing signs of patho-physiology. When we find this we treat it and the effects of gluten sensitivity and have seen promising results. I am compiling the science and clinical findings as well as the Integrative Manual Therapy perspective on it. We have been able to solve many chronic auto-immune problems with a gluten free diet and integrative manual therapy to the colon, specifically the cecum as it relates to gluten sensitivity and allergic reactions.

I am looking for people's experiences as well. We are looking through our success stories of our patients and I would like other people's experiences of their illness and issues and how gluten free diet helped them. Their personal path toward health using the gluten free diet would be great to see.

Please, if you have a story about your own history with gluten sensitivity could you forward that to me at

ralph@missionhillspt.com

In my practice, I've found this to be an emerging problem over the past 3 years and I want to get the information and help out to the people who need it.

thanks in advance for all your help with this.

my best to you all

Ralph Havens PT OCS IMTC

www.missionhillspt.com
@ 6:06pm ET on October 29, 2008 I'm new at the Celiac thing. I have been eating gluten free, I am still getting very sick once a week or once every third week. Help! What am I doing wrong?

When you eat something with gluten do you get sick right a way..............or days later?????????
Let me know
@ 9:46am ET on October 30, 2008 Hi,

If you have not already made an appointment with a dietitian knowledgeable in celiac disease, please do. She or he can go over with you what you are eating to make sure you are not unintentionally eating gluten. Ask your gastroenterologist for a referral.

In the meantime, please read the Living Gluten-Free post entitled, “How to tell if a food is gluten free.” Also, please visit my website www.glutenfreedietitian.com. Read the Gluten-Free Diet Basics page as well as the Newsletter page. There are several newsletter topics you will find helpful, including Help for the Newly Diagnosed.

This will get easier—promise!

Tricia
@ 8:25pm ET on March 14, 2009 Hi Tricia. I am a registered outpatient dietitan at Hoag Memorial Hospital in Newport Beach, CA. I consult with celiacs in my practice and am responsible for writing the MNT guidelines for celiac disease. In my research I am having difficulty finding actual medical nutriton therapy guidelines for celiac disease. Much of the information I find is about the general diagnosis and treatment of CD and the gluten free diet. Can you you direct me to the appropriate resources? I need guidelines on the macro- and micro nutrients required by the celiac patient including fiber,calories,etc.
Thank you very much.
Miriam Matulich R.D.
hbmimi@verizon.net
@ 3:25pm ET on March 15, 2009 Hi Miriam,

Does your hospital subscribe to the American Dietetic Association's on-line Nutrition Care Manual? If so, there is an extensive section on celiac disease. Also, please go to ADA's Evidence Analysis Library topic on celiac disease--it is free to all ADA members. We are currently in the process of developing practice recommendations on celiac disease for dietitians. If you will be at FNCE in Denver, please make plans to attend the Pre-FNCE workshop on celiac disease. We will be discussing these recommendations in detail. Please let me know if I can be of any further assistance.

Tricia
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